Failure is not an option.

We do everything we can to protect those we love. What do we do when they become sick and no one knows how to make them better?

At SAVE JON, we don’t do research for research’s sake. We build cures for desperate patients. But we can’t do it alone. We need your help.


The clock is ticking.

Donate to SAVE JON


Failure is not an option.

We do everything we can to protect those we love. What do we do when they become sick and no one knows how to make them better?

At SAVE JON, we don’t do research for research’s sake. We build cures for desperate patients. But we can’t do it alone. We need your help.


The clock is ticking.

Donate to SAVE JON


Failure is not an option.

We do everything we can to protect those we love. What do we do when they become sick and no one knows how to make them better?

At SAVE JON, we don’t do research for research’s sake. We build cures for desperate patients. But we can’t do it alone. We need your help.


The clock is ticking.

Donate to SAVE JON


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Our Story

A sister’s love. A doctor’s resolve. A scientist’s ingenuity.

SAVE JON was founded in 2014 by the brother-sister team Lisa and Jon Boyette with Dietrich Stephan to cure Primary Sclerosing Cholangitis (PSC), the same disease that killed Walter Payton almost two decades ago.   Exactly NOTHING has changed for clinical care of PSC patients in that time.  That’s UNACCEPTABLE.

At SAVE JON we believe in changing the things you can’t accept.



Our Mission


OUR MISSION IS SIMPLE:
Cure the disease in time to save the lives of real patients.

PROBLEM
Our patient is going to run out of time.

SOLUTION
A strategic master plan – executed by the smartest people and technology on the planet.



Our mission to save lives will pave the way to cure other diseases in the future.

There is no time to waste.



Our mission to save lives will pave the way to cure other diseases in the future.

 

How We Do It



Because we are an international, multi-disciplinary team, our process is very different from other research organizations. See how we do it.


Our Process



What Makes Save Jon Different?


SAVE JON is a non-profit organization with a new approach to bringing solutions to patients and their families. We design a master strategy for understanding and curing a disease with leading researchers, then bring together patients, clinicians, and scientists from academia, government, and industry to work as a team at executing that strategy.



Jon Boyette
I started SAVE JON because my younger brother has Primary Sclerosing Cholangitis (PSC) and will die without a liver transplant. I think we have the power to make a real difference if we focus on serving him and other PSC patients full-time. I tell people that my number one client is my brother, but that’s not quite true. His needs as a prototypical PSC patient are central to informing how we prioritize our research agenda, but really my number one client is my mom. As a mother myself, I can’t live with the idea that if my son were to fall ill – life-threateningly ill – I wouldn’t be able to do anything about it. I have lived in fear for so many years now. I was a first-year medical student when my brother got sick. A year after that my mom was diagnosed with ovarian cancer. As a family we have been through the wringer – for over a decade. I cannot accept that this is the best we can do. It’s time for things to change. So we’re making that change happen – RIGHT NOW.
Jon Boyette
SAVE JON is my best answer to the hand we’ve been dealt. I know how smart we are. I’m an engineer, I know what tools are available to us that weren’t even five years ago. I’m a doctor, I know what is possible clinically. I’m a woman, and it is second nature to put my family before everything else. We underestimate our own abilities when it comes to performing miracles. We forget about the seemingly impossible feats we have pulled off in the past. As Americans this stuff is wound into our DNA. We take risks, and we do what needs to be done to protect the people we care about and people who need our help.

SAVE JON encourages collaboration – not competition – in the quest to save lives.

Which means when it comes to success, we look at things differently.




SAVE JON encourages collaboration – not competition – in the quest to save lives.

 

How You Can Help



SAVE JON, Inc. is a non-profit organization with 501(c)(3) exempt status. All contributions are tax deductible to the extent allowed by law. If you would like to help, head to our donation page:


Donate to SAVE JON

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Patients


Get information on PSC, support from other patients, join the PSC Registry, and learn about clinical trials for PSC.



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Researchers


We’re always on the lookout for talented team members and new partners in our research endeavors.



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Supporters


Find out how you can help by donating to research efforts, volunteering your time, and raising awareness.



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